Levittown Spotlight on…….

Hope for Hannah Hannah pic

This week’s spotlight is on Hannah, and her Hope For Hannah movement !

Hello Hannah, so tell us, what section do you live in ? in Farmbrook Levittown PA
Any brothers or sisters you want to mention ( do you get along lol) ?  I have 2 older sisters, Faith 13 and Samantha 11., they love me!
Grandma and grandpa’s ? Yes 2 grandmama and 2 grand pops
What’s your favorite toy ? Sally the seahorse !!
Do you have any pets ?   Yes, Scrappy a English bull dog.
What are your favorite outfits to wear ?  I like anything yellow with my bows.
Tell us a little about your mom and dad ; My mom and dad are the best.  They are engaged to be married. My moms name is Vicki Pizzullo and my dad name is Justin Ginion.  They don’t get out much because I am sick and most of their time is taking care of me. They will do anything for me;) that makes them happy.
The doctor gave me 1 1/2 to 2 years life expectancy, my mom and dad know it will be longer;) they have a lot of hope. I eat from a feeding tube and I have to be suction often. Since I can’t swallow that good. I am on a lot of medications to help relieve the pain. I have really bad acid reflux. I am getting a surgery in September to help with my throwing up.
Thanks so much Hannah (and mom and dad). We as a community are praying for you everyday!  Before we go today, Hannah wanted us to share some info on her condition to spread awareness. She also reminded us to tell everyone to make sure they get their Hope of Hannah / Levittown fundraiser shirt !!  ( links posted on Levittown Comforts Facebook page https://www.facebook.com/LevittownComfort  )
Here if Hannah’s Facebook page, like it to stay in touch with her updates and ways to be involved and help…    https://www.facebook.com/hopeforhannahbear
Globoid Cell Leukodystrophy, more commonly known as Krabbe (crab ā) Disease, is an inherited neurodegenerative lysosomal enzyme disorder affecting the central and peripheral nervous systems.
Children who inherit the disorder lack an important enzyme (GALC) that is needed for the production of normal myelin (white matter) in the central and peripheral nervous systems. Myelin is the protective covering of the nerve cells and acts like insulation surrounding an electric wire.
When the enzyme GALC is deficient, it produces toxic substances in the brain, causing myelin loss, change to brain cells, and neurological damage.
Krabbe Disease has four phenotypes: early infantile, later onset infantile, adolescent, and adult. Progression of the disorder is rapid and death occurs in early childhood in the infantile types.
One in 100,000 live births in the United States are afflicted with Krabbe Disease. Approximately 2 million people (or one out of 125) in the United States are carriers of the genetic deficiency that causes Krabbe Disease. Yet, awareness about this disease is very limited. Until recently the only treatment options were limited to symptom management and palliative care.
Now, a new and revolutionary treatment, Cord Blood Transplant is saving the lives of many sick, young children and babies. This new method of treatment is bringing new hope to those afflicted with a variety of diseases including Krabbe, other Leukodystrophies and Lysosomal Storage Disorders.
Krabbe Disease is Genetic
Krabbe disease is inherited in an autosomal recessive manner. If both parents carry a disease-causing mutation in the GALC gene there is a 25 percent chance of having a Krabbe affected child with each conception, a 50 percent chance that each offspring will be a carrier and a 25 percent chance of having a child who does not carry a disease causing mutation.
This genetic disease is found in all ethnic groups.
The carrier rate in the general population is estimated to be 1 in 125. Krabbe Disease occurs in about 1 in 100,000 births in the United States.
Diagnosis can easily be made by testing the white cells from a blood sample for GALC activity.

 

Hope For Hannah T-shirt Fundraiser

Levittown Fill_navy backround

Okay, here it is.  The Levittown t-shirt  inspired by the Sections challenge we held on Levittown Comfort. We met with the gang from the sponsor of that challenge, 41 Sections, and together we have decided that all proceeds from the shirt be donated to Hope for Hannah and her cause. First up , lets send a thank you to the sponsors of this shirt, which will assist in the production cost of the shirts, and allow all of us to raise more proceeds from the sale !!  They are …….

41 Sections

MG Apparel Team

ECI.  Real Comfort. Real Simple

Kiss Electric

Scappa’s Trattoria  

The Five Four Bar  

Keeping with 41 Sections apparel quality standards, these shirts will be made right here in the USA and be on sale for $16.

The shirt drive will kick off Wednesday morning with an announcement on Levittown Comfort. We do have a few more spots for sponsors left,  if any business or group would like to chip in. Start spreading the word now to your L-Town family and friends, don’t miss out on this really cool shirt, and all for a  great cause as well !

And just in case you haven’t heard of this story, check out the about section on their Facebook page here……

https://www.facebook.com/hopeforhannahbear

Stay tuned,

Levittown Comfort

Comfort meets Comfort

Come join us this Sunday while we hang out with ECI and their Comfort Challenge.   Comfort meets Comfort at the Levittown Fire Company Car Show!  Check out the info below.  See ya Sunday !

 

comfort-challenge-side-ad

Hi ,

Join us Sunday in support of the Levittown Fire Company! Stop by our tent for the Comfort Challenge, prizes and much more!

Visit our Web Site to learn more about the Comfort Challenge here.

Learn more about the event on Facebook here.

Here are the basic details of the event:
Levittown Fire Company 6 County Way Levittown, PA 19058 Get Directions

2013 Car show and Family Fun day Sunday August 18th 10-4pm Rain date Sunday August 25th 10-4pm
All proceeds from the show benefit the volunteer fire company to help purchase firefighting equipment.

Hope to see you there,

Chase Musser

 

Looking for something to do this weekend ?

LC  Peaches pic

 

Looking for something to do this weekend.   How bout some old fashion mid-summer fun picking some peaches. Shady Brook fun is holding Peachey Fun Days this weekend, here are a few details and a link to their homepage.   Have a great weekend !

Peachy Fun Days – August 10 & 11 from 11 am to 4 pm

Join us for a “peachy” fun weekend! Enjoy Gourmet Peachy Treats, Crafts for the Kids, Shady Brook Farm Playground, Inflatable Attractions for the Kids, Wagon Rides to Peach Orchard, Pick-Your-Own Peaches & more!

Wagon Ride & Inflatable Attraction Wristbands are $2.00/person, p-y-o peaches are $0.99/lb.

http://shadybrookfarm.com/

 

Levittown Spotlight On…….

 

LC spotlight on Shea pic

Meet Shea Andress !  Shea was our 41 Sections trivia winner.  Shea is sporting her winning t-shirt from Jim and the gang at  fortyonesections.com

 

LC: Tell us a little bit about yourself
Shea:  Ok, a bit about me…!!!!!
I grew up in Stonybrook, currently reside in Magnolia Hill
I am a teacher.. my passion in life. Would be a Pediatrician as my 2nd choice!
I am married to Jim Martell.. I have 2 sons, Noah 13 & Charlie 3  &  2 stepson Jake 13, Joseph 11
I attended St. Michael the Archangel for grade school.. Conwell-Egan Catholic for HS… Holy Family University for college
We are VERY  active and involved  with our boys sports.. TONS of baseball with the older boys and Soccer for Charlie
My favorite place on earth is Disney World… I love being with my family! I love to go to the beach, read, shop, LOVE the outdoors, amusement parks, art & crafts.. LOVE to dance.. I am a sucker for old architecture(old school building, historic homes) could spend hours touring and taking it all in.
As my children grow older, I plan to travel.. spend A LOT more time in the South. Also,  Italy, Hawaii, Greece are a few on my bucket list
.favorite shows are Parenthood & NCIS..
LC: Tell us some of your favorite things about growing up in Levittown…
Shea; Favorite thing about growing up in Levittown was the street where I grew up… we had so many kids/friends on our block & in the immediate sections that we always had something to do.. a few favorites. Swimming in the Brook Pool, man hunt, riding our bikes, going to the shopping center, walking to the old Levittown Eastern for Big League Chew bubble gum.. it was simple, but I wouldn’t change a thing, but always fun!!! My mom was great.. she always let the neighborhood hang out at our house.. we would play basketball on the driveway, listen to music as we got older. And when those street lights came on.. that was it.. we scattered until the next day!!!!! We had great neighbors. Most had been there as long as the house had been. I always felt safe.. I knew someone would be there if I needed help. I didn’t even own a house key until I moved into my own house b/c we never locked the door.. we didn’t have to!!
LC;  Thanks Shea, lastly, tell us what you like about our Levittown Comfort page…
Shea; I like following the Levittown Comfort page b/c I keeps me up to date with all the happenings in the area. I like to see the events that get posted and local news.. Also, the contests and pictures keep our scary world, light! Keeps it simple.. like it used to be.. we need more of that!!
Thanks so much for sharing Shea !!
Levittown, if you have someone who you would like us to put the Spotlight On, contact Lynne at lynne@levittowncomfort.com

Sign of the Times

 

Long before Facebook wall posts and Twitter feeds, residents of Levittown relied on a weekly newspaper for their local news.

The following excerpt was found in The Levittown Times, circa 1952:
“We [The Levittown Times] have been requested by the Slater family of Levittown to inform new residents that the warranty card for the stove may be found in the broiler, under the chrome rack. Don’t accidentally burn it. It’s important.”
The Levittown Times–”Levittown’s Home Newspaper” was a great resource for residents of the new community. This local paper featured only stories concerning residents of Levittown. Anyone living in another community, would have found this paper of little interest.

Some popular features included an “Around Town”, filled with birth announcements and gossip, along with “For Women Only”, focused on the Levittown woman and her household duties.

Levittown Comfort is YOUR Levittown Times. This blog is designed to provide Levittowners with valuable information, from Levittowners. Unlike a weekly newspaper, this blog allows for immediate response. At Levittown Comfort, your stories and comments are encouraged and welcome.

 

These findings and more are shared by Dr. Chad Kimmel, the immediate past president of the Pennsylvania Sociological Society. His research interests include the Levittown Heritage Oral History Project, Traditions of Deviance Project, and the Pennsylvania Sociological Association Archival Project. To read more, click here :

http://www.pasocsociety.org/article4-kimmel.pdf